RealTalk MS

If you're a regular listener, you've heard me say that the things that people affected by MS want the most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, functions of public policy. The people who decide whether we get these things are our elected officials at both the state and federal level. That's why advocacy should be a high priority for everyone affected by MS. Make no mistake. MS advocacy delivers real results. Joining me in exploring how advocacy drives changes that improve the lives of people living with MS, and why you may want to consider becoming an MS activist, are Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz. Ready to learn more about MS advocacy? You can take the next step from the comfort of your own home. We're sharing the details of next week's virtual MS Activist Rally.  We'll tell you about a study that found a Mediterranean Diet could have a positive impact on cognition among people living with MS You'll learn about a clinical trial that's currently underway to determine whether aerobic exercise can promote myelin repair. We're sharing the details about an upcoming International Progressive MS Alliance webcast that's focused on developing treatments for progressive MS. And we'll tell you how high school seniors or college graduates who are affected by MS can apply for an Oscar the MS Monkey academic scholarship. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're all about MS advocacy  :22 The virtual MS Activist Rally takes place March 28. Are you registered???  5:22 STUDY RESULTS: Mediterranean Diet Is associated with cognition in MS   8:01 A clinical trial is underway to determine whether aerobic exercise can promote myelin repair  9:43 The International Progressive MS Alliance is hosting a webcast focused on developing treatments for progressive MS  11:01 Oscar the MS Monkey is accepting academic scholarship applications from high school seniors and college graduates who are affected by MS  11:57 Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz discuss how advocacy makes a real difference in the lives of people affected by MS, and how you can get involved    13:49 Share this episode  27:12 Have you downloaded the free RealTalk MS app?  27:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/290 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society MS Activist Rally registration https://p2a.co/Rally2023 STUDY:  Mediterranean Diet is Associated with Cognition in Multiple Sclerosis https://aan.com/MSA/Public/Events/AbstractDetails/52954 Webcast: Developing Treatments to End MS Progression registration https://msif.org/progressiveMSwebcast Oscar the MS Monkey Academic Scholarship Application http://mroscarmonkey.org/site/Scholarship%20Application%202023.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 290 Guests: Holly Pendell and Angel Hardy Heinz Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

For many people, one of the most challenging aspects of living with MS is living with uncertainty. Living with unanswerable questions like, "Is today the day I experience a relapse?" "Will my disability worsen?" "Will I be able to continue working?" "Will I be able to take care of my family?"    These are all very real questions, and while there may not be answers for them today, there are steps you can take and strategies you can adopt to ensure that you're managing and minimizing the uncertainty of living with MS. Joining me to talk about her journey as a mom living with MS and to share how she's learned to cope with the uncertainty of MS is MS advocate Sarah Wolfe. Also joining our conversation with specific strategies for living your best life despite the uncertainties of MS is Dr. Laura Hancock, a neuropsychologist at the University of Wisconsin School of Medicine and Public Health. It's a big topic, and I'm devoting this entire MS Awareness Week episode of RealTalk MS to my conversation with Sarah Wolfe and Dr. Laura Hancock. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's MS Awareness Week and we're talking about living with the uncertainty of MS  :22 MS advocate Sarah Wolfe and Neuropsychologist Dr. Laura Hancock discuss the many different facets of successfully living with the uncertainty of MS    3:38 Share this episode  39:55 Have you downloaded the free RealTalk MS app?  40:15 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/289 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 289 Guests: Sarah Wolfe and Dr. Laura Hancock Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

When you visit the Oceans of Hope U.K. website, it reads, "Oceans of Hope is for people with MS, led by people with MS." It goes on to say, "Our aim is to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS." The folks at Oceans of Hope U.K. can make that claim with high confidence. My guest today is the founder of Oceans of Hope U.K., Robert Munns, who lives with MS himself. Robert had what he describes as a life-changing experience while serving as a member of the crew on what turned out to be an unforgettable sailing adventure. Robert's story is one you won't want to miss. Today, Oceans of Hope U.K. offers anyone living with MS the opportunity to experience that same personal transformation that Robert experienced. When you review your MRI scans with your neurologist, the focus is on those white matter lesions that characterize MS. However, study results announced at the 2023 ACTRIMS Forum show that white matter lesions are not the cause of severe MS disability. We're breaking down this game-changing research.  And speaking of game changers, we're sharing the details of a small, portable MRI device that can effectively image MS lesions.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: News from the 2023 ACTRIMS Forum and a story that I hope you find as compelling as I did  :22 Study results show that white matter lesions are not the cause of severe MS disability 2:22 A portable less invasive MRI device capable of imaging MS lesions  6:33 Meet Robert Munns, the founder of Oceans of Hope UK    9:25 Share this episode  37:20 Have you downloaded the free RealTalk MS app?  37:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/288 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Oceans of Hope U.K. https://oceansofhope.co.uk Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 288 Guest: Robert Munns Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the presentation of the Barancik Prize, awarded in recognition of exceptional innovation in MS research. This year's winner of the Barancik Prize is Dr. Ruth Ann Marrie, a clinician scientist at the University of Manitoba. The Barancik Prize is administered by the National MS Society, and this year's award recognizes Dr. Marrie's landmark discoveries that deepen our understanding of how and when MS evolves.  During the ACTRIMS Forum, Dr. Marrie joined me to discuss her groundbreaking research and the impact it's had on MS care. If you're a regular listener, you've probably heard me say that the things that people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials at the state and federal level.  That's why advocacy is a high priority for people affected by MS. The National MS Society's Public Policy Conference takes place next week, March 6-8, in Washington, D.C. Joining me to discuss how advocacy makes a real difference in influencing pending legislation, while giving us a preview of what we can expect to see and hear at this year's conference, is the National MS Society's Executive Vice-President for Advocacy and Healthcare Access, Bari Talente. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're back from the ACTRIMS Forum and a conversation with this year's winner of the Barancik Prize for innovation in MS research  :22 Dr. Ruth Ann Marrie discusses some of her groundbreaking research and its impact on MS care  1:57 We are one week away from the National MS Society's Public Policy Conference in Washington, D.C.  17:18 Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, discusses the importance of advocacy, while sharing a preview of the legislative issues that MS activists will be advocating for next week on Capitol Hill    18:18 Share this episode  32:25 Have you downloaded the free RealTalk MS app?  32:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/287 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 287 Guests: Dr. Ruth Ann Marrie and Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Two years ago, the National MS Society made a public commitment to do more to ensure that the MS movement was open to and reflective of everyone affected by MS. When you stop to consider issues like access to healthcare or MS clinical research, it quickly becomes apparent that diversity, equity, and inclusion aren't only organizational goals for the MS Society. They also address some of the systemic barriers that directly impact the quality of MS care for members of historically marginalized communities who are living with MS.  Joining me in exploring how the MS Society is embedding the principles of diversity, equity, and inclusion into every aspect of the MS movement is the National MS Society's Vice-President of Diversity, Equity, and Inclusion, Neisha Fredericks. We're also sharing the details of research conducted at the University of Virginia that identified a specific contributor to the autoimmune response and neuroinflammation that characterize MS. And we'll give you an up-close and personal illustration of how artificial intelligence (AI) will impact MS research and treatment. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Embedding diversity, equity, and inclusion into the MS movement  :22 Researchers identify a neuroinflammation "regulator" lurking in the gut microbiome  1:28 Artificial intelligence will have an impact on virtually every aspect of MS research and care  4:45 Neisha Fredericks, the National MS Society's Vice-President of Diversity, Equity, and Inclusion, discusses the work that's taken place and the work still to be done to ensure that the MS movement is open to and reflective of everyone affected by MS    9:38 Share this episode  32:13 Have you downloaded the free RealTalk MS app?  32:34 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/286 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY:  The Activity of the Aryl Hydrocarbon Receptor in T Cells Tunes the Gut Microenvironment to Sustain Autoimmunity and Neuroinflammation https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3002000 ChatGPT https://openai.com/blog/chatgpt Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 286 Guest: Neisha Fredericks Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself. Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis. Joining me for what I consider to be a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world. We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments. We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School. And we'll share what the latest research is telling us when it comes to answering the question, "Should you discontinue your disease-modifying therapy once you turn 60?" We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's a masterclass in pediatric MS  :22 Researchers take a major step forward in understanding and potentially treating primary progressive MS  2:01 University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative  6:49 Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us  8:58 Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS  13:05 Share this episode  37:05 Have you downloaded the free RealTalk MS app?  37:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/285 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY:  Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad031/7024973 STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression https://sciencedirect.com/science/article/abs/pii/S0303846723000288 RealTalk MS Episode 255: Aging with MS with Dr. John Corboy https://realtalkms.com/255 PEDIATRIC MS RESOURCES: National MS Society Information and Resources on Pediatric MS https://nationalmssociety.org/pediatricms Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families https://mroscarmonkey.org Network of Pediatric Multiple Sclerosis Centers https://usnpmsc.org iConquer MS Kids & Teens https://kidsandteens.iconquerms.org/kidsandteens Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 285 Guest: Dr. Brenda Banwell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

MS can sometimes feel isolating. And the ironic thing about those feelings of isolation is that you can experience them even when you're with other people. It's the feeling that, while everyone is being supportive, nobody really gets it. They've never experienced what it's like to actually live with MS. That's why connecting with others who are living with MS can be such a difference-maker. My guests in this episode are Debby Bennett, the Manager of Community Engagement at the National MS Society, and Ricky Maxwell, an MS Society self-help group member and leader, and we're talking about how and where you can find support and connect with others who can better understand some of the things you might be going through.  We're also sharing the details of the National MS Society's latest $7.8 million dollar investment in new research projects aimed at stopping MS progression, restoring lost function, and ending MS forever. We'll tell you about a study that revealed a link between sleep and cognitive issues among people living with MS.  You'll hear about the results of a study that showed how cognitive rehabilitation therapy and mindfulness might improve cognitive dysfunction for people with MS. We'll tell you about this year's recipient of the Barancik Prize for Innovation in MS Research (and we'll explain what makes her such an outstanding choice!) The National MS Society's 2023 Pathways to Wellness virtual program is just two days away! We'll tell you how and where you can still register for the event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The value of connecting with others who are living with MS :22 The National MS Society invests $7.8 million in new research projects  1:49 Research reveals link between sleep and cognitive issues among people with MS  4:17 Study shows that cognitive rehabilitation therapy and mindfulness are effective in improving cognition among people with MS 6:58 Dr. Ruth Ann Marrie is this year's recipient of the Barancik Prize for Innovation in MS Research  9:42 The 2023 Pathways to Wellness virtual event is two days away  12:57 Debby Bennett and Ricky Maxwell discuss how and why you'll want to connect with others who are living with MS  14:43 Share this episode  27:09 Have you downloaded the free RealTalk MS app?  27:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/284 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Research Summary: Fourteen New Research Projects Funded by the National MS Society https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/summaries-of-newly-funded-research-projects-january-2023.pdf RealTalk MS Episode 238: The Pathways to Cures Research Roadmap with Dr. Carol Whitacre and Professor Alan Thompson https://realtalkms.com/238 STUDY: Pathways Between Multiple Sclerosis, Sleep Disorders, and Cognitive Function:  Longitudinal Findings from the Nurses' Health Study https://journals.sagepub.com/doi/epub/10.1177/13524585221144215 RealTalk MS Episode 259: How Lack of Sleep Affects MS (And What You Can Do About It!) with Dr. Katie Siengsukon https://realtalkms.com/259 STUDY: Cognitive Rehabilitation and Mindfulness Reduce Cognitive Complaints in Multiple Sclerosis (REMIND-MS): A Randomized Controlled Trial https://www.sciencedirect.com/science/article/pii/S2211034823000330 Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 284 Guest: Faith Bigam Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Faith Bigam was diagnosed with MS in 2014, when she was 12 years old. She didn't know what MS was because, well, why would any 12-year-old kid know what MS is? But Faith quickly learned and just a year later, she had already become an Ambassador for the MS Society of Canada. The initial years of Faith's MS journey weren't easy, and I'm not sure how someone of any age who had less resilience might have handled them. But I'm pretty sure that next to the word "resilience" in the dictionary you'll find a picture of Faith Bigam. And I promise you, there are some things about Faith that are going to surprise you. The National MS Society's 2023 Pathways to Wellness virtual program takes place February 9th. We'll give you the details and tell you how to register for this free event.  You'll hear about L'Oreal's "smart" lipstick applicator. It's the first product in a line designed to make the task of putting on makeup accessible to people living with disabilities.  And we'll tell you what researchers discovered in a study that focused on analyzing the gut microbiome of young people living with pediatric MS.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Meet the embodiment of resilience and adaptability, Faith Bigam :22 Learn more and register for the 2023 Pathways to Wellness in MS virtual program  1:15 L'Oreal develops an adaptive lipstick application device (and why that matters!)  2:21 A research team analyzed the gut microbiome of young people living with pediatric MS  4:27 My conversation with Faith Bigam  7:56 Share this episode  31:07 Have you downloaded the free RealTalk MS app?  31:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/283 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome Explained https://tremlettsmsresearchexplained.wordpress.com/2023/01/05/metagenomic-analysis-of-the-pediatric-onset-multiple-sclerosis-gut-microbiome-explained STUDY: Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome https://n.neurology.org/content/98/10/e1050 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 283 Guest: Faith Bigam Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

The CDC tells us that 36 million falls are reported each year, resulting in 3 million adults being transported to the emergency room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and more than 30% fall multiple times. Falling can cause broken bones, brain damage, and worse. That's why I'm dedicating this entire episode of RealTalk MS to fall prevention. Dr. Sara Migliarese joins me with tips, tools, and strategies you can use to prevent falls while keeping yourself safe and more independent. Dr. Migliarese is a Board Certified Neurologic Clinical Specialist, and a Professor in the Department of Physical Therapy at Winston-Salem State University where she is also the Director of the Neurologic Clinical Residency Program. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Fall prevention could be a life-saver  :22 Dr. Sara Migliarese shares tips, tools, and strategies for preventing falls (and tells you what to do when you can't!)  2:08 Share this episode  31:12 Have you downloaded the free RealTalk MS app?  31:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/282 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society: Free from Falls Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/Free-from-Falls Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 282 Guest: Dr. Sara Migliarese Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Today, we're talking about a topic that you've told me is the topic that you'd most like me to cover on this podcast -- autologous hematopoietic stem cell transplantation, or HSCT. And I'm dedicating this entire episode of RealTalk MS to a deep dive on the subject with the man who pioneered autologous HSCT as a treatment for relapsing-remitting MS, Dr. Richard Burt. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Autologous HSCT with Dr. Richard Burt  :23 Dr. Richard Burt takes us on a deep dive into autologous HSCT for MS  :57 Share this episode  54:38 Have you downloaded the free RealTalk MS app?  54:59 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/281 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Amazon: Everyday Miracles: Curing Multiple Sclerosis, Scleroderma, and Autoimmune Diseases by Hematopoietic Stem Cell Transplant by Dr. Richard Burt https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/B0BRNTJZ9X/ref=sr_1_1 National MS Society: aHSCT in MS https://nationalmssociety.org/Treating-MS/aHSCT Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 281 Guest: Dr. Richard Burt Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week, in Episode 279 of RealTalk MS we talked with Professor Tanja Kuhlmann about a new framework for researching, diagnosing, and treating MS that was proposed by the International Advisory Committee on Clinical Trials in Multiple Sclerosis. This proposed framework represents the next evolutionary step in diagnosing and treating MS. Joining me this week to talk about how this proposed framework will impact people living with MS is the National MS Society's Chief Advocacy, Services, and Science Officer, Dr. Tim Coetzee. For many people, the new year inspires familiar resolutions to start a diet. If you're searching for the "MS Diet", we're sharing an update on what the experts have learned about diet and MS, and what they recommend. The National MS Society's Pathways to Wellness virtual program takes place February 9th. We'll give you the details and tell you how to register for this free event.  And you'll hear about Frequency Therapeutics' remyelination project for people living with MS. Clinical trials are planned to begin this year! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: What the proposed framework for diagnosing, and treating MS means for people living with MS  :22 What experts have learned about diet and MS  1:50 Why you'll want to register for Pathways to Wellness in MS   4:56 Frequency Therapeutics remyelination project  6:02 Dr. Tim Coetzee discusses how the proposed framework for diagnosing, and treating MS will take MS care to the next level  8:43 Share this episode  30:19 Have you downloaded the free RealTalk MS app?  30:40 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/280 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279 National MS Society: Diet and MS https://nationalmssociety.org/Research/Research-News-Progress/Diet Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Frequency Therapeutics Multiple Sclerosis Project https://frequencytherapeuticstx.com/pipeline-programs/multiple-sclerosis-program Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 280 Guest: Dr. Tim Coetzee Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Every episode of RealTalk MS features updates and reports about emerging science. And, as you listen, some of you may wonder, 'When will these scientific achievements benefit me? When will these breakthroughs and advancements make their way from the laboratory workbench to the clinic?'   That's exactly what the panel of MS experts who comprise the International Advisory Committee on Clinical Trials in MS are proposing in a new framework that leverages what scientists are continuing to learn and re-defines how we talk about MS, research MS, diagnose MS, and treat MS.  The new framework being recommended by the committee is broadly outlined in a paper that was published about 8 weeks ago. Joining me to discuss what this proposed framework is all about is the paper's lead author, Professor Tanja Kuhlmann. We're also talking about the new high-efficacy disease-modifying therapy that received its FDA approval last week. We're sharing the details behind the FDA's approval of a Phase 3 clinical trial for Masitinib, an investigational therapy for treating progressive MS. We'll tell you about Abata Therapeutics' first T-cell treatment candidate for treating progressive MS. And you'll hear about the results of a study that compared the outcome of treating people living with secondary progressive MS with autologous hematopoietic stem cell transplantation (aHSCT) versus treatment by disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Experts recommend a new framework for researching, diagnosing, and treating MS  :22 FDA approves Ublituximab (Briumvi), an anti-cd20 disease-modifying therapy  1:12 FDA approves Phase 3 clinical trial for Masitinib as a treatment for progressive MS  4:35 Abata Therapeutics announces its first T-cell therapy candidate to treat progressive MS  7:20 Study shows aHSCT more effective than DMTs in treating secondary progressive MS  10:14 Professor Tanja Kuhlmann discusses a new framework for researching, diagnosing, and treating MS  13:51 Share this episode  26:37 Have you downloaded the free RealTalk MS app?  26:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/279 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Ublituximab versus Teriflunomide in Relapsing Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2201904 AB Science https://ab-science.com RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205 STUDY: Hematopoietic Stem Cell Transplantation in People with Active Secondary Progressive MS https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 279 Guest: Professor Tanja Kuhlmann Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

When people ask me how I go about deciding who to interview for this podcast, my answer has always been the same. I look for difference-makers. People whose efforts are making a real difference in the MS community. They might be a researcher, clinician, rehabilitation specialist, MS Navigator, fundraiser...it's a long list. A difference-maker might also be someone who motivates and inspires all of us by the way they choose to embrace life. My favorite conversation this year was with just that kind of person. And, judging from the many thousands of you who listened to that conversation and the feedback so many of you shared with me, it was one of your favorite convesations, too. In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis. For some people, that would have been the end of the story. For Tyler, it was only the beginning. We have a lot to talk about! Are you ready for RealTalk MS??! Re-visiting my favorite conversation of 2022  :23 Tyler Campbell takes us through his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement.  1:56 Share this episode  27:40 Have you downloaded the free RealTalk MS app???  28:00 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/278 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 278 Guests: Tyler Campbell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

For me, the holiday season is a time for joy, celebration, and reflection. And when I reflect upon the advances in MS research that we've seen in the past year, it's hard not to feel encouraged. 2022 will be remembered as the year when the National MS Society published the Pathways to Cures research roadmap, a bold initiative focused on stopping MS progression, restoring lost function, and ending MS forever. I talked about this pivotal moment in the history of MS research with Dr. Carol Whitacre and Professor Alan Thompson, and they each shared their insights into what the Pathways to Cures research roadmap was all about and what this historic initiative means for people affected by MS. My conversations with Dr. Whitacre and Professor Thompson were two of the most important conversations that I had in 2022 and, as the year draws to a close, I think they're worth revisiting. We have a lot to talk about! Are you ready for RealTalk MS??! Re-visiting the publication of the Pathways to Cures research roadmap  :22 Dr. Carol Whitcare discusses how Pathways to Cures came about and what it means for people living with MS   2:36 Professor Alan Thompson discusses the current status of MS research and what has to happen next to stop MS progression, restore lost function, and end MS forever  15:17 Share this episode  32:55 Have you downloaded the free RealTalk MS app???  33:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/277 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 277 Guests: Dr. Carol Whitacre and Professor Alan Thompson Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In this special episode of RealTalk MS, I'm joined by Professor Peter Rieckmann, Stanca Potra, and Maria Paz Giambastiani. We're taking a look back at the advances that have been made in treating MS and focusing our eyes ahead to determine the work that still needs to be done.  Professor Rieckmann is the Chief Physician of Neurology and Clinical Neuroplasticity at the Medical Park Loipl, Germany. Professor Rieckmann has also served as the Chair of the MS in the 21st Century initiative since its inception in 2011. Maria Paz Giambastiani has been living with MS for the past 17 years. She's a columnist, writing about disability and inclusion for More Than Words magazine. Maria has also authored several books and publications focused on MS. Stanca Potra is the founder of the Smile Center, a support and counseling center for people living with MS in Romania. Stanca has been living with MS for the past 9 years. Professor Rieckmann, Stanca, and Maria are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

Some of you might remember that at the end of October, I was in Amsterdam, attending the 2022 ECTRIMS Congress. ECTRIMS is an acronym for the European Committee for Treatment and Research in Multiple Sclerosis, and their annual scientific congress is the largest MS research conference in the world. As the conference ended, I sat on some steps outside the conference center alongside the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. And Dr. Bebo shared his initial impressions of some of the research that had been presented over the 3-day conference.  If you missed that episode of the podcast, you may want to listen to episode number 270 of RealTalk MS After having had a few weeks to consider all of the research that was presented at the ECTRIMS Congress, Dr. Bebo is back to share his final ECTRIMS research update, and talk about the rest of the research that caught his attention at the 2022 ECTRIMS Congress. You'll also meet the Co-Chair of the MS Society Southern California chapter's Emerging Leaders Board and this year's recipient of the Dorothy Corwin Spirit of Life Award, Kristen Karasek. Kristen was diagnosed with MS at the age of 24, but, as will become clear to you, she hasn't let MS get in her way. I think you'll find Kristen's positivity to be infectious. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part Two of our 2022 ECTRIMS research roundup with Dr. Bruce Bebo  :22 My conversation with the Co-Chair of the MS Society Southern California Chapter's Emerging Leaders Board and Dorothy Corwin Spirit of Life recipient, Kristen Karasek  1:37 The National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, discusses the research that caught his attention at the largest MS research conference in the world  16:20 Share this episode  35:21 Download the free RealTalk MS app  35:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/276 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 270: From the 2022 ECTRIMS Congress with Dr. Bruce Bebo https://realtalkms.com/270 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 276 Guests: Dr. Bruce Bebo, Kristen Karasek Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

The first step in living well with MS is establishing a treatment plan with your neurologist or MS specialist. And a disease-modifying therapy, or DMT, should be the foundation of that plan. Joining me to talk about what disease-modifying therapies can and can't do, and how to work with your doctor to find the best MS medication for you is the Clinical Pharmacy Specialist in Multiple Sclerosis and Neuroimmunology at VCU Health in Richmond Virginia, Ross Tingen. Why are we talking about global warming on a podcast about MS? Because we're talking about the results of a study that show how climate change has a negative impact on people living with multiple sclerosis and other neurological conditions. We're also sharing the results of a study that demonstrate the sobering reality of the association between socioeconomic status and death among people living with MS. If you're on Tecfidera, you'll want to hear about a study that focused on how alcohol may change the efficacy of your DMT.   And we'll tell you about a study that revealed significant differences in how the prodromal phase of MS affects men and women at different ages. (And we'll also tell you why understanding the MS prodrome is important!) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: How to find the best MS medication for you  :22 Study shows climate change impacts people living with MS  1:08 Study examines the impact of socioeconomic status on death among people with MS  3:28 Study shows alcohol dulls the metabolism of Tecfidera  7:01 Study analyzes differences due to sex and age in the MS prodrome  8:35 Ross Tingen discusses how to work with your doctor to find the best disease-modifying therapy for you  18:40 Share this episode  27:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/275 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Impacts of Climate Change and Air Pollution on Neurologic Health, Disease, and Practice: A Scoping Reviewhttps://n.neurology.org/content/early/2022/11/16/WNL.0000000000201630 Tremlett's MS Research Explained: Low Socioeconomic Status Was Associated with a Higher Mortality Risk in Multiple Sclerosis Explained https://tremlettsmsresearchexplained.wordpress.com/category/ms-socioeconomic-status-research STUDY: Low Socioeconomic Status Was Associated with a Higher Mortality Risk in Multiple Sclerosis https://journals.sagepub.com/doi/full/10.1177/13524585221129963 STUDY: Alcohol Inhibits the Metabolism of Dimethyl Fumarate to the Active Metabolite Responsible for Decreasing Relapse Frequency in the Treatment of Multiple Sclerosis https://journals.plos.org/plsuone/article?id=10.1371/journal. pone.0278111 Tremlett's Research Explained: Sex and Age Differences in the Multiple Sclerosis Prodrome Explained https://tremlettsresearchexplained.wordpress.com/2022/11/03/sex-and-age-differences-in-the-multiple-sclerosis-prodrome-explained STUDY: Sex and Age Differences in the Multiple Sclerosis Prodrome Explained https://pubmed.ncbi.nlm.nih.gov/36408518 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 275 Guest: Ross Tingen, PharmD, BCPS, MSCS Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century. In this special episode of RealTalk MS, we're talking with Professor Dawn Langdon and David Yeandle about the impact of MS-related cognitive issues on employment.  Professor Langdon is a Professor of Neuropsychology with a special interest in cognition at the Royal Holloway University of London, in the United Kingdom. Professor Langdon is also a Trustee of the MS Trust in the U.K.  David Yeandle was diagnosed with MS in 2010. David was a Head of Employment for a major organization in the U.K., and he's a passionate advocate for helping people living with MS stay employed.  Both Professor Langdon and David are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or floods, no one is immune when Mother Nature chooses to act up. That's why being prepared for a natural disaster is important for everyone. And if you're living with MS, it's especially important for you to have your family's emergency preparedness plan in place. Senior Medical Advisor to National Disaster Operations at the American Red Cross, Mary Casey-Lockyer, joins me to talk about the things that people living with MS should include in their emergency preparedness plan. We're also talking with Dr. Aaron Kesselheim, a researcher at Harvard's Brigham and Women's Hospital. And if you're on Lemtrada, Dr. Kesselheim could use your help. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Disaster Preparedness  :22 If you're on Lemtrada, Dr. Aaron Kesselheim could use your help  1:43 Mary Casey-Lockery discusses disaster preparedness for people living with MS  10:49 Share this episode  31:22 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/274 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 274 Guest: Dr. Aaron Kesselheim and Mary Casey-Lockyer Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it. Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of Neurology at the VA Portland Healthcare System, and Co-Director of the VA MS Center of Excellence West. We're also talking about a new framework for thinking and talking about MS that's been proposed by an international panel of MS experts. We'll tell you about a study that looked at polypharmacy and MS (Of course, we'll also tell you what polypharmacy is and why you should be aware of it!) We'll share the details around the discovery of human antibodies that have been shown to prevent Epstein-Barr infection (And we'll explain why this could be incredibly important) If you're an MS caregiver, or you know one, I'm asking for just 5 minutes of your time. We're celebrating National Caregivers Month by breaking down the details of the National Family Caregiving Strategy that was recently submitted to Congress. And we're celebrating the indomitable quality of the human spirit by sharing the story of Eric Domingo Roldan and his mom, Sylvia. We have a lot to talk about! Are you ready for RealTalk MS??! Thanksgiving is two days away!  :22 This Week: Managing Spasticity  1:02 Experts propose a new framework for thinking about and talking about MS  2:07 Polypharmacy and MS  5:55 Researchers identify antibodies that prevent Epstein-Barr Virus infection  9:02 If you're an MS caregiver, or you know one, can I have 5 minutes of your time?  11:30 The 2022 National Family Caregivig Strategy   13:55 Eric Domingo Roldan and his mom, Sylvia, make it into the Guinness Book of World Records  16:34 Dr. Michelle Cameron discusses spasticity and MS 18:40 Share this episode  33:55 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/273 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Multiple Sclerosis Progression: Time for a New Mechanism-Driven Frameworkhttps://www.thelancet.com/journals/laneur/article/PIIS1474-4422(22)00289-7/fulltext Tremlett's MS Research Explained: Polypharmacy and Multiple Sclerosis: A Population-Based Study https://tremlettsmsresearchexplained.wordpress.com/2022/10/27/polypharmacy-and-multiple-sclerosis-a-population-based-study/ STUDY: Polypharmacy and Multiple Sclerosis: A Population-Based Study https://journals.sagepub.com/doi/full/10.1177/13524585221122207 RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229 RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231 STUDY: Epstein-Barr Virus gH/gL Has Multiple Sites of Vulnerability for Virus Neutralization and Fusion Inhibition https://cell.com/immunity/fulltext/S1074-7613(22)00544-1 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver 2022 National Strategy to Support Family Caregivers https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf Eric Domingo Roldan's Instagram Handle @eeRiicbcn Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 273 Guest: Dr. Michelle Cameron Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy