In this episode of Diary of a Kidney Warrior podcast, we feature the courageous experiences of young peritoneal dialysis patient, Emma Kearns. Emma shares her journey from her early kidney disease diagnosis through her life threatening battle with sepsis, kidney failure and ableist workspaces. The powerful story is not just about the trials and troubles, but also a narrative of resilience, courage, and determination.

Centring on Emma's life post-kidney failure, we delve into her return to Northern Ireland for a transplant. A detour that included leaving behind her life in Liverpool and fearing the catheter surgery while adapting to dialysis. The emotional roller coaster of chronic kidney disease (CKD), the misconceptions surrounding dialysis, the mental toll of being tied to a machine, and balancing a semblance of normalcy become crucial topics of discussion.

A further push into the narrative discusses the discomfort of 'drain pain', and the ever-present catheter, yet her relentless spirit and determination shine through. Emma's dedication to raise public awareness about kidney disease, fuelled by the TikTok community's support, is a key element spurring her to fight her health challenge with a brave face. Her resilience, strength, and optimism put on display for young individuals fighting similar battles.

The broader discussion about ableist mindsets, the lack of understanding, empathy for young CKD patients, and the central role social media plays in connecting kidney disease patients globally is also tackled. Join us in this heartfelt conversation that not only encapsulates the harsh reality of CKD but also the inherent spirit of survival, support, and hope.

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Follow Emma Kearns

Instagram:

https://www.instagram.com/_thekidneychroniclesigsh=NGpidjU0bXgwb3dx

Tik Tok: https://www.tiktok.com/@_thekidneychronicles?_t=8klHphQ0ExU&_r=1

If you were affected by any of the issues raised in this episode contact:

Kidney Care UK

•           Website: www.kidneycarekuk.org

•           Email: info@kidneycareuk.org

•           Tel: 01420 541 424

•           Facebook: www.facebook.com/kidneycareuk.org

•           Instagram: @kidneycareuk

•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org

Young Adult’s Kidney Group (YAKG)

https://www.kidneycareuk.org/get-support/young-adult-kidney-group-yakg/

Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.