Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein

Dr. Linda Bluestein

Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone with symptomatic joint hypermobility (EDS, HSD, Marfan's). Learn to optimize your hypermobile health! read less
Health & FitnessHealth & Fitness

Episodes

95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
11-04-2024
95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD
Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.TakeawaysIntegrative medicine takes a holistic approach to health, focusing on achieving overall well-being rather than just managing symptoms.Pain management should involve a comprehensive care plan that includes movement, education, nutrition, sleep, psychosocial support, modalities, medications, and supplements.Understanding pain neuroscience can help patients reframe their perception of pain and explore non-pharmacological strategies for pain relief.Nutrition plays a crucial role in reducing chronic pain and inflammation, and a whole-food, plant-based diet is recommended.Modalities such as acupuncture and manual therapies can provide effective pain relief and should be considered as part of a comprehensive pain management plan. Developing healthy movement habits is crucial for optimal movement.Heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi can provide pain relief.Managing diet and reducing mast cell activation can help alleviate stress response.Laser therapy, ozone injections, and shockwave therapy may be effective for pain management.Caution is needed when considering the use of medications and supplements.Interventional pain management should be approached with strict criteria and careful consideration.Regenerative medicine shows promise but requires further research and careful selection of providers.Chapters ➡00:00 Introduction to Dr. Heather Tick02:05 Understanding Integrative Medicine07:41 Redefining Pain Management10:31 The Importance of Education in Pain Care12:58 The Role of Nutrition in Pain Relief21:53 Exploring Different Modalities for Pain Relief53:56 Impact of Habits on Movement55:11 Benefits of Tai Chi56:34 Connective Tissue and Movement57:37 Role of Mast Cells in Stress Response58:10 Effectiveness of Laser Therapy01:00:35 Usefulness of Ozone Injections01:02:03 Effectiveness of Shockwave Therapy01:03:13 Overprescribed and Underutilized Medications01:03:44 Importance of Stopping Medications01:04:32 Impact of Proton Pump Inhibitors01:05:37 Role of Gut in Producing Neurotransmitters01:06:34 Importance of B Vitamins and Coenzyme Q1001:17:26 Evaluation of Interventional Pain Management01:19:16 Risks of Steroid Injections01:21:26 Appropriate Use of Regenerative Medicine01:25:30 Determining the Expertise of Medical Professionals01:31:28 Differentiating Flares from New Problems01:33:48 Challenges of IV Infusions and Regenerative MedicineConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  Learn more about Dr. Tickhttps://heathertickmd.com/https://www.facebook.com/heathertickmd/Heather Tick - YouTubeBuy Dr. Tick’s bookhttps://tinyurl.com/3na9zchpFibromyalgia and other pain conditionshttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC3236313/Evidence-Based Nonpharmacologic Strategies for Comprehensive Pain Care: The Consortium Pain Task Force White Paper (Dr Tick is the first author)https://www.sciencedirect.com/science/article/pii/S1550830718300223Medical errorshttps://pubmed.ncbi.nlm.nih.gov/28186008/https://nap.nationalacademies.org/resource/9728/To-Err-is-Human-1999--report-brief.pdfhttps://psnet.ahrq.gov/issue/incidence-adverse-events-and-negligence-hospitalized-patients-results-harvard-medicalSham acupuncturehttps://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2022.834112/fullAcupuncture in the emergency departmenthttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8896475/Risk of stroke after chiropractic manipulationhttps://www.jmptonline.org/article/S0161-4754(14)00267-X/fulltextWUSTL program developed by Shirley Sahrmann, PT, PhDhttps://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/Mast cells:  Versatile gatekeepers of painhttps://www.sciencedirect.com/science/article/abs/pii/S0161589014000546Carla Stecco, MD
94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
04-04-2024
94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson
In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints.  She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility.  Watching this episode on YouTube is recommended since there are some graphics used.  TakeawaysProper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.Chapters ➡00:00 Introduction01:22 Background and Interest in Hypermobility11:56 Neurological Interest and Stroke Recovery16:23 Traditional Physical Therapy Approaches25:24 Importance of Bracing and Supports39:18 Feet and Ankle Support40:28 Pelvis Support43:32 Neck Braces51:46 Dispensing DME and Bracing56:56 Carrying Products in the Clinic01:02:59 Final Thoughts and ResourcesConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  Chalela Physical Therapy Institute for EDS and CCI/Cervical InstabilityBendy Bodies's Amazon PageEclipse Cervical Collar - Thuasne USAhttps://www.ehlers-danlos.com/echo/Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridgehttps://www.tamingthezebra.org/Hypermobility/Ehlers-Danlos Syndrome Educational Handouts#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind
93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
07-03-2024
93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin
This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. TakeawaysThe book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.Chapters ➡00:00 Introduction and Background01:58 Motivation for Writing the Book03:28 Challenges in Managing EDS and HSD06:08 Different Types of Hypermobility and Connective Tissue Disorders07:35 Approaching Physical Therapy for EDS and HSD09:21 Primary Treatment Approach and Identifying Key Issues21:04 Approaching Physical Therapy with Overlapping Problems22:48 Non-Linear Path of Physical Therapy31:01 Modifying Movement for Gentle Exercise31:21 Addressing Deconditioning and Weakness35:13 Neural Rehabilitation and Muscle Firing36:09 Steps to Successful Strengthening40:18 Expanding the Toolkit for Physical Therapy43:13 Approaching Stabilization and Alignment56:32 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  Virtual book event sign uphttps://www.tamingthezebra.orghttp://www.elevationwellness.co/www.goodhealthphysicaltherapy.com/clinic-staff/www.medbridge.com/heather-purdin-physical-therapyhttps://www.olagrimsby.com/courses-page/https://www.naiomt.comhttps://feldenkrais.comhttps://counterstrain.comhttps://frequencyspecific.comhttps://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/#ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
29-02-2024
92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT
In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.TakeawaysPhysical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.Open communication with the physical therapist and realistic expectations are essential for success.Chapters ➡00:00 Introduction to Dr. Lillian Holm01:15 What can physical therapy do for people with symptomatic joint hypermobility?04:19 Reasons why physical therapy may not lead to expected outcomes09:09 How to find the best possible physical therapist for EDS and HSD11:58 Misconceptions about physical therapy for joint hypermobility21:25 Approach for people who don't like to exercise25:41 Resetting the boom and bust cycle35:23 Metrics for measuring success in physical therapy50:18 Progress and Setbacks52:47 Balancing Stretching with Strengthening56:22 Starting to Walk Again58:12 Physical Therapy for Scoliosis01:01:04 Resources and Information01:02:23 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  Learn more about guest, Dr. Lilian Holm:https://www.lilianholm.com/https://www.instagram.com/hypermobilitydoctor/https://www.facebook.com/HypermobilityDRead her guest blog post for the Hypermobility MD website:https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you#RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
22-02-2024
91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach
In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. TakeawaysHand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Chapters00:00 Introduction and Overview01:38 Difference between Occupational and Physical Therapy04:44 Common Reasons for Hand Pain in Connective Tissue Disorders09:53 Approach to Hypermobility in Hands12:46 Strengthening Hands with TheraPutty20:55 Strengthening Hands without Overdoing It21:27 Reasons Traditional Therapies May Not Work for Hand Pain24:08 Low Profile Hand Support Options28:23 Ring Splints and Insurance Coverage38:34 Ring Splints and Plastic Splints40:33 Hand Exercises for Different Age Groups42:33 Avoiding Strain and Hyperextension45:21 Tips for Traveling with Hand Problems47:51 Challenges of the Medical System for Chronic Pain51:22 Hand Pain with Writing53:52 Hand Pain and Numbness in Sleep56:16 Thumb Pain and De Quervain's Tendonitis59:17 Cubital Tunnel Syndrome01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)01:06:14 Decuervain's Tendonitis01:09:17 TFCC Tear01:13:32 Trigger Finger01:17:31 Differentiating Trigger Finger from Subluxation01:18:38 Pulley Injuries in Rock Climbers01:19:25 Hypermobility Misdiagnosis01:20:46 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  Learn more about guest, Corinne McLees here:https://www.handcoachcorinne.com/Check out the items mentioned in episode 91 here:https://amzn.to/49FkaGYCheck out the Bendy Bodies Amazon Shop here:https://www.amazon.com/shop/hypermobilitymdLinks to other products:https://www.silverringsplint.com/https://www.evabellejewelry.com/https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne#HandPain #HandProblems #HandWeakness #WristPain#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD
15-02-2024
90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD
In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysBrain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.Chapters00:00 Introduction of Dr. Ilene Ruhoy01:57 Defining Brain Fog04:14 Risk Factors for Brain Fog09:42 Identifying Contributing Factors11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome14:09 Cognitive Dysfunction and Craniocervical Instability18:18 Cognitive Dysfunction and CSF Leak22:59 Cognitive Dysfunction and Dysautonomia25:25 Cognitive Dysfunction and Upper Cervical Instability30:12 Cognitive Dysfunction and CSF Leak38:11 Applying Knowledge in Clinical Practice39:04 The Importance of Making a Meaningful Difference40:31 The Role of Nutrition in Cognitive Function42:38 The Impact of Food Choices on Inflammation43:44 Avoiding Processed Foods and Sugar44:38 The Role of Complex Carbohydrates and Dairy45:28 Increasing Vegetable Consumption46:44 Improving Lifestyle Factors47:09 Where to Find Dr. Ilene Ruhoy OnlineConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  https://www.bendybodiespodcast.com/13-healing-the-brain-holistically-with-ilene-ruhoy-md-phd/https://patreon.com/unraveledpodhttps://instagram.com/ileneruhoymdphd/https://twitter.com/RuhoyMDhttps://tiktok.com/ileneruhoymdphd#BrainFog #BrainFogAwareness #BrainHealth#FunctionalMedicine #NutritionForBrainHealth #InflammationAwareness#MastCellActivationSyndrome #MCAS #CSFLeakInsights #TarlovCystAwareness #TarlovCystWarrior#BendyBodiesPodcast #BendyBuddy #HypermobilityMD
89. Conquering the Sleep Struggle with Roger Seheult, MD
08-02-2024
89. Conquering the Sleep Struggle with Roger Seheult, MD
In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways:Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.Understanding the circadian rhythm is important for optimizing sleep.Light, especially blue light, can significantly impact sleep quality.The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.Morning light exposure is important for setting the body's internal clock.The timing of eating can affect sleep quality.Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.Shifting sleep patterns can be challenging, especially for individuals with chronic illness.Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.Sleep medications should be used cautiously due to potential side effects and dependency issues.Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.Education on sleep disorders and their relationship with chronic illness should be improved in medical training.Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.Chapters00:00 Introduction of Dr. Roger Seheult03:22 Understanding the Circadian Rhythm07:02 Impact of Light on Sleep09:20 The Suprachiasmatic Nucleus and its Role in Sleep09:49 The Importance of Light for People with Chronic Illness13:35 The Effect of Blue Light on Sleep15:28 Ideal Bedtime for Optimal Sleep17:25 The Impact of Electronics on Sleep19:26 The Role of Melatonin in Sleep20:05 The Importance of Morning Light23:29 The Timing of Eating and its Effect on Sleep24:00 Challenges of Working from Home and Small Meals25:20 Sleep Schedule and Chronic Illness28:57 Falling Asleep While Watching TV31:49 Sleep Apnea and Chronic Illness39:05 Sleep Apnea and Temporomandibular Dysfunction44:09 EDS and Central Sleep Apnea44:30 Elevating the Head of the Bed45:23 Alignment Problems and Breathing47:37 Sleep Medications and Side Effects1:00:15 Supplements for Sleep1:02:01 Sleep Watches and Monitoring Devices1:03:01 Sleep Positions and Joint Instability1:04:46 Paresthesias and Numbness in Sleep1:05:11 Pillow Recommendations for Cervical Instability1:07:35 Waking Up in Pain1:09:58 Sympathetic Nervous System Activation1:12:23 Safety of Melatonin1:14:49 Improving Education on EDS and HSDConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  www.medcram.comhttps://www.youtube.com/@Medcramhttps://www.optum.com/care/locations/california.htmlhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175781/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7052958/https://www.itamar-medical.com/professionals/watchpat-300/https://youtu.be/OIwHYaDyswA?si=xSOW5miP4otLEKR6#BendyBodiesPodcast
88. Service Dogs and Disability Rights with Tiffany Lee, JD
01-02-2024
88. Service Dogs and Disability Rights with Tiffany Lee, JD
In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key points discussed: **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.Chapters00:00 Introduction and Overview01:14 Americans with Disabilities Act03:28 Reasonable Accommodations in the Workplace04:38 Determining Reasonable Accommodations09:07 Accommodations in High School and College11:22 Challenges with Disability Services in Education13:59 Advocating for Accommodations in Education16:36 Disclosing Disabilities to Employers and Universities19:03 Determining Job Compatibility with Accommodations21:03 Getting a Service Dog23:37 Regulations and Considerations for Service Dog Training36:33 Dealing with Unresponsive Disability Lawyers38:07 Appealing Denied Disability Benefits40:03 Legal Recourse for Undertreatment of Pain43:07 Accommodations for Productivity Standards43:45 Correcting Inaccuracies in Medical Records47:46 Knowing When to Get an Accommodation or Apply for Disability48:36 Considerations for Applying for Disability50:23 Assets and Poverty Threshold for Disability58:58 Making Disaster and Emergency Response Accessible01:02:44 Hypermobility Hack: Walking DeskConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources:  For disability rights in general: https://www.ada.gov and https://adata.org/For service dogs: https://www.ada.gov/resources/service-animals-2010-requirements/ and https://www.ada.gov/resources/service-animals-faqs/For disability rights in employment: https://www.dol.gov/general/topic/disability/ada and https://www.eeoc.gov/laws/guidance/your-employment-rights-individual-disabilityhttps://choosework.ssa.gov/#BendyBodiesPodcast #HealthAdvocacy #DisabilityRights #ADAInsights #AccommodationsTalk #LegalAdvocacy #ServiceDogJourney #DisabilityBenefits #WorkforceChallenges
87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner
25-01-2024
87. Disordered Eating in Dance with Josh Spell, LICSW, and Guest Co-Host Jennifer Milner
In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  TakeawaysDancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.Chapters00:00 Introduction and Welcome00:30 Introducing Josh Spell01:36 Prevalence of Eating Disorders in Dancers03:09 The Relationship Between Hypermobility and Eating Disorders05:08 Understanding Eating Disorders as Coping Mechanisms08:00 The Intersection of Eating Disorders and Other Mental Health Issues10:35 The Impact of Social Media and Diet Culture on Eating Disorders13:25 Self-Image and Body Standards in the Dance World16:19 The Influence of Social Media and Zoom on Body Image20:25 Balancing Sacrifice and Suffering in the Dance World23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder36:31 Steps to Take If You Suspect You Have an Eating Disorder42:18 Hypermobility Hack: Giving the Eating Disorder a Persona45:12 Where to Find Josh Spell OnlineThis important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority! 🧬🔬🦓Resources mentioned during the episode:Links for show notes:https://flexiblemindcounseling.org/https://www.instagram.com/spellbound20/https://www.linkedin.com/in/josh-spell-msw-licsw-07b17816/https://www.jennifer-milner.com/National Suicide Prevention Lifeline: 1.800.273.8255Crisis Text Line: Text HOME to 741741; Free crisis support, anywhere in USEating Disorder Helpline: Call or text 1.800.931.2237NEDA – National Eating Disorders Association: www.nationaleatingdisorders.orgNAMI – National Alliance on Mental Illness: www.nami.orgProject Heal – https://www.theprojectheal.org/Find an Accredited Registered Dietitian (RDN) – www.eatright.org/find-an-expertFind a Therapist: www.psychologytoday.com/us/therapists#Hypermobility #JointHypermobility #BalletLife #HypermobilityAware #DanceWellness #BodyPositiveBallet #HealthyDancer #BalletBodyLove #DancerTips #NutritionForDancers #EmpoweredDancer #NourishYourPassion #MindBodyBallet #BalancedDancerLife #hEDS #EhlersDanlos #HSD
86. The Unfair EDS Journey with Amanda Cassil, PhD
18-01-2024
86. The Unfair EDS Journey with Amanda Cassil, PhD
In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysApproach advocacy from a place of compassion and understandingRegulate your nervous system and slow down to make more intentional and strategic decisionsAcknowledge and process grief as a natural part of living with chronic illnessConsult with trusted individuals and healthcare providers for guidance and support.Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.Chapters00:00 Introduction01:04 Motivation for Giving the Talk at the EDS Society Global Conference04:14 Advocacy and the Challenges of the Healthcare System07:16 Approaching Advocacy without Blame10:27 Grief and Acceptance in Chronic Illness13:34 Key Takeaways from the Talk18:04 The Role of the Prefrontal Cortex in Chronic Illness19:12 Neurodiversity and Advocacy20:12 Presenting Research to Doctors23:02 Dealing with Suboptimal Experiences with Clinicians26:09 Processing Traumatic Experiences29:16 The Role of Grief in Chronic Illness36:09 Coping with Traumatic Experiences40:36 Presenting Research to Doctors (Continued)46:27 Navigating the Challenges of Collaboration48:07 Addressing Multiple Symptoms and Issues53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation59:41 Finding Your Way Through an Unfair JourneyThis important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Resources mentioned during the episode:https://www.STEMpsychology.comhttps://www.instagram.com/stempsychology/https://www.linkedin.com/in/drcassilhttps://drgabormate.com/book/the-myth-of-normal/https://www.resmaa.com/merchhttps://www.besselvanderkolk.com/#HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem
85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
11-01-2024
85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein, Afrin, Kinsella & Jill Brook, MA
In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key Highlights:1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.Chapters00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and ResourcesConnect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy
84. Slipping Rib Surgery in EDS with Adam Hansen, MD
04-01-2024
84. Slipping Rib Surgery in EDS with Adam Hansen, MD
In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysSlipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.He has built a network of surgeons around the world to provide local treatment options for patients.There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.Chapters00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing RemarksThis important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:http://www.youtube.com/@adamhansen6524Slipping Rib Syndrome Physical Examination   SD 480p:https://www.youtube.com/watch?v=Na69xXUZGhg
83. Expert Insights: Breath Work in Pain Management with Jill Miller
21-12-2023
83. Expert Insights: Breath Work in Pain Management with Jill Miller
In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women’s Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysJill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this.Chapters00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval TrainingThis important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/https://jen.health/https://www.tuneupfitness.com/shop/online-course/roll-into-hiithttps://patternpt.com/https://www.youtube.com/@TuneUpFitnesshttps://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref
82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD
14-12-2023
82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD
In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysPatients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.Chapters00:00 Introduction00:29 Dr. Halverson's Background and Research Interest03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome07:02 Antagonistic Relationship with Healthcare Professionals08:29 Impact of Antagonistic Relationship on Patients09:47 Triggers for Transition into Unbearable Symptoms12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome13:44 Importance of Panoply of Symptoms in Diagnosis15:22 Challenges in Describing Multi-Systemic Symptoms16:26 Numeric Pain Scales and the Complexity of Chronic Pain19:40 Research on Hypermobile Ehlers-Danlos Syndrome20:39 Research on Other Forms of Ehlers-Danlos Syndrome23:56 Failure of Empathy in Patient-Provider Relationships27:24 Worse Health Outcomes and Trust Issues28:06 Impact of Failure of Empathy on Patients30:33 Dealing with Antagonistic Relationships31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome36:12 Clinician-Associated Traumatization and its Differences from Other Constructs39:21 Surprising Aspects of the Research42:01 Recommendations for Patients with Clinician-Associated Traumatization45:01 Future Directions of Research49:04 Closing RemarksThis important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, articles, and services mentioned in this episode:https://bioethics.iu.edu/people/colin-halverson.htmlhttps://pubmed.ncbi.nlm.nih.gov/34524722/https://doi.org/10.1016/j.ssmqr.2023.100237Dr. Halverson can be reached at chalver@iu.edu.#InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney
81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT
07-12-2023
81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT
In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysPosture and alignment play a crucial role in foot pain in people with joint hypermobility.Orthotics can be an effective intervention for managing foot pain in hypermobile patients.Assessing and addressing foot pain early in children can prevent the development of other pain problems.Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.Proper lacing techniques can help alleviate foot pain and discomfort.Lisa Ralston provides valuable insights and tips for managing foot problems.Chapters00:00 Introduction and Guest Introduction02:05 Causes of Foot Pain in People with Joint Hypermobility06:12 Approach to Hypermobility Patients08:18 Common Causes of Foot Pain10:10 Pain Begets Pain11:36 Approach to Hypermobile Patients14:59 Orthotics for Children17:02 Different Approach for Hypermobile Patients19:06 Assessment and Treatment of Foot and Ankle21:00 Shoe Selection and Tying Techniques23:19 Different Foot Types and Shoe Recommendations26:31 Importance of Firm Heel Counter in Shoes27:45 Tying Shoes Properly31:40 Recommended Shoe Brands34:53 Orthotics and Failed PT39:51 Addressing Failed PT47:51 Orthotics and Failed Orthotics53:48 Over-the-Counter Orthotics56:06 Self-Mobilization of Feet01:08:46 Hypermobility in Ice Skaters01:09:16 Hypermobility Hacks01:09:26 Foot Problems and Solutions01:10:21 Lacing Techniques for Foot Comfort01:10:54 Finding More Information OnlineThis important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://lisaralstonpt.janeapp.com/https://www.bauerfeind.com/b2c/https://www.oofos.com/https://www.abeofootwear.com/https://www.humanlocomotion.com/https://www.brooksrunning.com/en_uhttps://www.hoka.com/en/us/https://www.aetrex.com/homehttps://yoursole.com/ushttps://www.vasylimedical.com/https://www.birkenstock.com/ushttps://www.nike.com/https://www.saucony.com/en/homehttps://naot.com/https://www.keenfootwear.com/https://www.merrell.com/US/en/homehttps://www.chacos.com/US/en/homehttps://www.mephisto.com/us/https://www.theballetblog.com/about-us/lisa-howell/https://nyulangone.org/locations/harkness-center-for-dance-injurieshttps://www.vasylimedical.com/products/easyfithttps://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/
80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD
30-11-2023
80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD
In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  What specialty evaluations are most important for patients with hypermobility syndromes·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD·  How they determine when to perform genetic testing and the findings in this group of patients·  How his approach has evolved since the clinic’s inception in 2019·  The research that he has conducted and relevant findings·  The role of autoimmunity in EDS and HSD·  Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)·  The role of the immune system in symptomatic joint hypermobility·  The relationship with fibromyalgia·  What percentage of patients are diagnosed with hEDS vs HSD·  What he says to people who assume that HSD is a less serious conditionThis important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic ConnectEhlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinichttps://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206https://x.com/knidac?s=21https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/fullhttps://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdfhttps://pubmed.ncbi.nlm.nih.gov/35687402/https://www.ehlers-danlos.com/https://www.ehlers-danlos.com/healthcare-professionals-directory/#BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax#SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration#InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility
79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD
16-11-2023
79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD
In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles.  His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome) ·  How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related·  What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis·  How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware” ·  What correlations exist between Crohn's disease, irritable bowel disease and RLS·  Why it is so crucially important to listen to AND believe our patients·  How Mast Cell Activation Disease and MCAS differ from one another·  Why the term “syndrome” can be problematic·  What environmental factors can play a role in MCAS·  When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis·  What testing can be performed for MCAS and the significance of tryptase levels ·  How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.   The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.gidoctor.net/provider/leonard-weinstock-mdhttps://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/https://www.mcasfund.org/https://www.nowleap.com/leap/https://www.ifm.org/https://ldnresearchtrust.org/https://www.ldnscience.org/https://www.genebygene.com/ #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome  #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast #PodcastDiscoveries #EDSdoctor #CompressionSyndrome
78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C
09-11-2023
78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C
In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered.  Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  Inequality in healthcare and how we can best advocate for ourselves·  Why we should prioritize diversity, equity, and inclusion in medical spaces ·  The need for personal responsibility when learning about sensitive topics ·  Discrimination and power dynamics in the healthcare setting ·  Handling microaggressions·  Addressing internalized ableism  ·  The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOCThis important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.healedandempowered.com/ #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor
77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD
02-11-2023
77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD
In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York.  Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension.  Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws.  He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·   How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation ·   Why people with EDS are at increased risk of craniocervical instability·   What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability ·   Why he started performing surgery for Eagle’s Syndrome ·   Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems·   Causes of elevated intracranial pressure This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment.  It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player.  Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial.This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.       YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://chiariedscenter.com/Access Dr. Bolognese's intake forms here.https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0 #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor
76.  Orofacial Pain with Robinson-Smith, DDS
19-10-2023
76. Orofacial Pain with Robinson-Smith, DDS
In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine.  Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  Why the jaw is problematic so frequently in those with joint hypermobility·  How ligamentous laxity contributes to jaw dysfunction ·  The influence of hormones and puberty on jaw pain and function ·  Open locking - what is it and how can you reduce the risk?·  How you can make dental visits less traumatic This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.   Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.ofpcos.com/ #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy  #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor