In Sixteen Years of Endometriosis

Amy and Brittany

Laugh, cry, and shout with us as we talk all things endometriosis! We hope our podcast will support and empower you. Our podcast has 2 types of episodes: (1) Chats between Amy and Brittany, 2 best friends that pride ourselves on sharing accurate, well-researched information in a fun, digestible way. Hang out with us while we delve into embarrassing “did-that-really-just-happen?!” endo stories and talk vulnerably about our personal growth. Some of our favorite episodes are the later ones – we really love how our knowledge, and also we, have grown over time! (2) Amy leads amazing interviews with renowned excision surgeons, subject experts, and endo advocates worldwide! Remember, the info presented here is educational info only and NOT medical advice. read less

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126. Neuropelveology and the Role of the Nerves in Symptoms with Dr. Ana Sierra

126. Neuropelveology and the Role of the Nerves in Symptoms with Dr. Ana Sierra

Today Amy speaks with Dr. Ana Sierra about: -how neuronavigation and neuromodulation can help patients in pain -how nerve involvement may play a role in bladder symptoms and leg pain -what nerve sparing surgery is and why is it important Who is Dr. Ana Sierra? Graduated from the Autonomous University of Querétaro, she began her studies in minimally invasive gynecological surgery at the Hospital Español and the London Clinic at Anahuac University. Dr Sierra is certified in basic and advanced laparoscopy by the The European Society for Gynaecological Endoscopy (both courses held in Clermont Ferrand, France). She also did master courses: Anatomical landmarks and Advanced management of endometriosis (in Dubai UAE). At IRCAD Barretos she also completed an advanced management course for deep infiltrative endometriosis. Dr. Sierra is certified by the International Society of Neuropelviology level 1 (clinical neuropelveology) and level 2 (neuronavigation and surgical neuromodulation), and is currently a Board member of the society. She works at Instituto Doyenne in Mexico City where her practice focuses on patients with chronic pelvic pain for people of all genders with and without endometriosis and in San Juan del Rio, Queretaro. CLICKABLE LINKS AT insixteenyears.com/episode126 —4 part webinar series on Neuropelveology —Amy’s review of the Curable app —Como duele tener endometriosis - Episode with Dr. Sierra in Spanish on Amy’s Spanish podcast. To contact Dr. Sierra: INSTAGRAM @dra_anasierra DOYENNE INSTITUTE IN MEXICO CITY: https://institutodoyenne.com/@institutodoyenne CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

Episodes

126. Neuropelveology and the Role of the Nerves in Symptoms with Dr. Ana Sierra

126. Neuropelveology and the Role of the Nerves in Symptoms with Dr. Ana Sierra

Today Amy speaks with Dr. Ana Sierra about: -how neuronavigation and neuromodulation can help patients in pain -how nerve involvement may play a role in bladder symptoms and leg pain -what nerve sparing surgery is and why is it important Who is Dr. Ana Sierra? Graduated from the Autonomous University of Querétaro, she began her studies in minimally invasive gynecological surgery at the Hospital Español and the London Clinic at Anahuac University. Dr Sierra is certified in basic and advanced laparoscopy by the The European Society for Gynaecological Endoscopy (both courses held in Clermont Ferrand, France). She also did master courses: Anatomical landmarks and Advanced management of endometriosis (in Dubai UAE). At IRCAD Barretos she also completed an advanced management course for deep infiltrative endometriosis. Dr. Sierra is certified by the International Society of Neuropelviology level 1 (clinical neuropelveology) and level 2 (neuronavigation and surgical neuromodulation), and is currently a Board member of the society. She works at Instituto Doyenne in Mexico City where her practice focuses on patients with chronic pelvic pain for people of all genders with and without endometriosis and in San Juan del Rio, Queretaro. CLICKABLE LINKS AT insixteenyears.com/episode126 —4 part webinar series on Neuropelveology —Amy’s review of the Curable app —Como duele tener endometriosis - Episode with Dr. Sierra in Spanish on Amy’s Spanish podcast. To contact Dr. Sierra: INSTAGRAM @dra_anasierra DOYENNE INSTITUTE IN MEXICO CITY: https://institutodoyenne.com/@institutodoyenne CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

125. Exploring Endometriosis-Associated Pain

125. Exploring Endometriosis-Associated Pain

People with endo have a range of pain from none to mild to moderate to severe. Amy and Brittany talk about pain associated with endometriosis, such when and where we can have it. We give a quick and general overview of multiple reasons for endo-associated pain, such as inflammation, sensitization, and lesion location. This episode is a bird's eye overview and not an all exhaustive list of reasons why we can have pain with endo. Clickable links at www.insixteenyears.com/episode125 --What influences pain levels? From Nancy's Nook. --Location of lesions and where pain is felt. From Nancy's Nook. --Zanelotti A, Decherney AH. Surgery and Endometriosis. Clin Obstet Gynecol. 2017 Sep;60(3):477-484. doi: 10.1097/GRF.0000000000000291. PMID: 28742580; PMCID: PMC5635831. --Demco L. Review of pain associated with minimal endometriosis. JSLS. 2000 Jan-Mar;4(1):5-9. PMID: 10772521; PMCID: PMC3015350. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

124. Addressing Persistent Pain Post-Excision with Dr. Isabel Green

124. Addressing Persistent Pain Post-Excision with Dr. Isabel Green

Amy speaks to Dr. Isabel Green about: —common reasons why a patient may have persistent pain post surgery, from an incomplete excision to co-conditions. —the importance of working with our doctor to set patient-centered goals in our treatment. —how for *some* people addressing central sensitization, especially post excision, can be a key to getting out of continued pain; but at the same time, it’s important not to blame all pain on central sensitization and to explore other possible reasons for persistent pain as well. Who is Dr. Isabel Green? Born in Ecuador and then grew up in Washington DC, Isabel Green, MD, MEHP, completed her residency in Obstetrics and Gynecology at Johns Hopkins Hospital and went on to fellowship in Minimally Invasive Gynecology at MedStar Washington Hospital Center/Georgetown University. She moved west to join Mayo Clinic as a Consultant of Minimally Invasive Gynecologic Surgery and Gynecology in 2016. She serves as the Fellowship Director for Minimally Invasive Gynecology and in the role of Physician Lead of a multidisciplinary Chronic Pelvic Pain Clinic at Mayo, Rochester. Clickable links at www.insixteenyears.com/episode124 —Addressing pain post excision (from my website) —Mayo Clinic investigates persistent pelvic pain following endometriosis surgery – from the Mayo Clinic —Amy’s Curable review CONNECT WITH DR GREEN. Twitter/X: @isabelgreenMD CONNECT WITH US! INSTAGRAM: @in16yearsofendoWEBSITE AND RESOURCES: insixteenyears.comLIKE OUR SHOW? Please rate it or leave a review!SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

123. Bowel Endometriosis and Disease Mapping with Dr. Ramiro Cabrera

123. Bowel Endometriosis and Disease Mapping with Dr. Ramiro Cabrera

Today I speak with Dr Cabrera about: -how bowel endometriosis can be safely excised with very low complication rates and isn’t “too risky” to remove when in expert hands -what types of endometriosis advanced disease mapping can detect signs of -how the outcome of surgery or disease mapping is dependent on the operator (the surgeon doing the surgery or the sonographer doing the mapping) Who is Dr. Ramiro Cabrera? Dr. Ramiro Cabrera is a high-volume excision surgeon from Mexico. After training in minimally invasive gynecological surgery, he completed a fellowship in Deep Endometriosis Surgery in Brazil with Dr William Kondo. He works at the Doyenne Institute in Mexico City, and in 2023, together with some colleagues, he opened the Global Center of Endometriosis Care in Tijuana, Mexico. Currently, he also has a fellowship in which he teaches and trains surgeons in excision. He is a member of multiple international associations of gynecological surgeries and also a faculty member in several associations. In addition, he is co-founder of the Endo Life app. Episode with Dr Cabrera on Amy's Spanish podcast: https://open.spotify.com/episode/61fen5PELtTsWDbQUvIBRc?si=2fea6fec046a4d9f CONNECT WITH DR. CABRERA: INSTAGRAM @ramcabreramd INSTITUTO DOYENNE IN MEXICO CITY: https://institutodoyenne.com/@institutodoyenne ENDO GLOBAL GROUP IN TIJUANA: https://endoglobalgroup.com/@endoglobalgroup CONNECT WITH US! INSTAGRAM: @in16yearsofendoWEBSITE AND RESOURCES: insixteenyears.comLIKE OUR SHOW? Please rate it or leave a review!SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

122. Rebuilding Our Lives with Endometriosis

122. Rebuilding Our Lives with Endometriosis

Amy and Brittany talk about: -the difficulties of adjusting to a new, unwanted reality as illness impacts every aspect of our lives. -finding ourselves again, finding joy again, finding a life worth living again. -celebrating the small wins and being able to see how far we’ve come. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

121. Excision Surgery Considerations with Dr. John Dulemba

121. Excision Surgery Considerations with Dr. John Dulemba

Today I’m speaking with Dr. John Dulemba about: -How surgeons need to understand the limitations of their skills if they don't have a lot of experience yet. -How colostomy rates for bowel endo are extremely low in hands of an expert. -Risks and other considerations when thinking about excision surgery. Who is Dr. John Dulemba? A now retired excision surgeon who was in private practice in Denton, Texas, from 1986-2023. He performed over 7300 endometriosis surgeries, both robotically and via standard laparoscopy, so he has a lot of insight on endometriosis. Clickable links at insixteenyears.com/episode121 --Wright J, Lotfallah H, Jones K, Lovell D. A randomized trial of excision versus ablation for mild endometriosis. Fertil Steril. 2005 Jun;83(6):1830-6. doi: 10.1016/j.fertnstert.2004.11.066. PMID: 15950657. CONNECT WITH US! INSTAGRAM: @in16yearsofendoWEBSITE AND RESOURCES: insixteenyears.comLIKE OUR SHOW? Please rate it or leave a review!SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

120: Bias in Healthcare with Patient and Practitioner Kimether Redmon

120: Bias in Healthcare with Patient and Practitioner Kimether Redmon

Today I’m speaking with Kimether Redmon about: -Trauma-informed medical care. -Some biases a person may face in the medical setting. -Personal biases that Kimether has faced. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all. CONNECT WITH KIMETHER: Kimether IG: @therebelliousuterus  Kimether’s podcast IG: @endothickofit CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

119: Advocating for Ourselves with Patient and Practitioner Kimether Redmon

119: Advocating for Ourselves with Patient and Practitioner Kimether Redmon

Today I’m speaking with Kimether Redmon about: -Tips to improve our medical appointments -How to maximize the short amount of time we have with the practitioner. -How to be more specific when describing our symptoms -Our personal experiences with uncomfortable medical settings. Who is Kimether Redmon? She is an endometriosis patient as well as a Family Nurse Practitioner serving low-income uninsured patients in her area. Before her nursing career, she was a research consultant with a background in brain injury research, and employment. Being diagnosed with stage 4 endometriosis in 2021 after over 20 years of countless incidents of dismissal, gaslighting, bias, and incompetency has fueled her own diligence as a healthcare provider and educator that prioritizes high quality, trauma informed care to all. CONNECT WITH KIMETHER:Kimether IG: @therebelliousuterusKimether’s podcast IG: @endothickofit CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

118: Endo Standard of Care with Dr. Shilpa Rao of India

118: Endo Standard of Care with Dr. Shilpa Rao of India

Today we speak with Dr. Shilpa Rao, who is a dentist by profession and an endo crusader by passion. Shilpa has a YouTube channel called The Endometriosis Crusader in which she interviews patients and professionals about various topics related to endometriosis and reproductive health. Shilpa shares about her personal experiences with cultural and social barriers to care, as well as her hopes for endometriosis care in the future in India. Clickable links at insixteenyears.com/episode118 CONNECT WITH SHILPA Instagram: @endostrongg YouTube: Endo Crusader https://www.youtube.com/@shilpaa1980 CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

117: Disability Accommodations in the Workplace. Part 2

117: Disability Accommodations in the Workplace. Part 2

We continue to talk about work accommodations under the Americans with Disabilities Act. In part 2, we discuss medical documentation, examples of what are reasonable vs unreasonable accommodations, and telework. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations. Clickable links at insixteenyears.com/episode117 --OTHER REASONABLE ACCOMMODATION ISSUES (Enforcement Guidance on Reasonable Accommodation and Undue Hardship under the ADA) --Telework as a Reasonable Accommodation --Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act --Job Accommodation Network’s Practical Guide to Accommodations CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

116: Disability Accommodations in the Workplace. Part 1

116: Disability Accommodations in the Workplace. Part 1

We are going to talk about work accommodations under the Americans with Disabilities Act. In part 1, we discuss what accommodations are vs accessibility in general, who qualifies for accommodations under the ADA, and some ideas on how and when to request accommodation. DISCLAIMER: We are not employment lawyers or disability civil rights attorneys. This is a general discussion of what we've been learning for our own individual work situations and is not legal advice. We encourage you to double check all information we give in this episode and/or consult a qualified professional for advice if you are in a situation where you want to ask for work accommodations. Clickable links at insixteenyears.com/episode116 --Employees' Practical Guide to Requesting and Negotiating Reasonable Accommodation Under the Americans with Disabilities Act --Job Accommodation Network’s Practical Guide to Accommodations --Your Employment Rights as an Individual with a Disability --Ashley Jacobson: Changing Disabled Employment with Accommodations --EEOC Enforcement Guidance on Reasonable Accommodation and Undue Hardship Under the Americans with Disabilities Act CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

115: Dr. David Redwine, World-Renowned Excision Surgeon. Part 3

115: Dr. David Redwine, World-Renowned Excision Surgeon. Part 3

Until his retirement in 2012, Dr. David Redwine headed the world-renowned and award-winning Oregon Institute of Endometriosis at St. Charles Medical Center, Bend, Oregon, treating thousands of people with endometriosis via excision surgery from all across the US, Canada, and beyond. His research is on the website endopaedia.info and has been vital to the endometriosis community, helping empower and educate both patients and physicians alike. He has presented his theory of origin of endo, Mulleriosis, around the world. TODAY WE DISCUSS:—“Sins of the endometriosis literature.”—The recent research that came out with Horvath's pan-tissue clock and the origin of endometriosis.—Claims on the Lupron website is that it’s “used for the reduction of endometriotic lesions.”—Microscopic endometriosis.—The ESHRE updated endometriosis guidelines around diagnosis of endo. IN EPISODES 67 AND 68 (go back and check them out!), we did part 1 and part 2, in which we discussed:—endometriosis treatments—excision surgery—endometriosis recurrence—the embryonic origin of endo—why he considers Sampson’s theory of retrograde menstruation the most dangerous theory in the history of medicine—what endo does in the body—obstacles to endometriosis treatment CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

114: Endo Coaches, Naturopaths, Functional Medicine, and Wellness Culture with Kate Boyce

114: Endo Coaches, Naturopaths, Functional Medicine, and Wellness Culture with Kate Boyce

Many people regret having spent thousands of dollars on naturopathy, coaches, and functional medicine that didn’t help them, that they could have instead spent on excision surgery, a registered dietitian, pelvic floor therapy, SIBO treatment with a gastroenterologist, or other types of doctors/treatment. Today Amy speaks with Kate Boyce (she/her) on common red flags to look out for in wellness culture. Kate is a board certified patient advocate and endometriosis patient herself. She is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Clickable links at insixteenyears.com/episode114 --Hormones/HRT - write up from my website --Wellness Culture - write up from my website --Naturopathy and Functional Medicine - write up from my website --The "Endo Diet" - write up from my website CONNECT WITH KATE: INSTAGRAM: @endogirlsblog WEBSITE: https://endogirlblog.com/ CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

113: Endometriosis and Hormone Receptors with Dr. Dulemba

113: Endometriosis and Hormone Receptors with Dr. Dulemba

We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. For the past 20 years, he’s been testing the hormone receptors of endometriosis lesions. Today we discuss his findings and thoughts on endometriosis and hormones. Dr. Dulemba also joined us in episode 106 on robotic excision surgery and 109 on adhesions, so if you missed those, please check them out! Also I’d like to thank Kate from EndoGirlsBlog for brainstorming these questions with me! —CONNECT WITH DR. DULEMBA: Dr Delumba works at the Women’s Centre in Denton, Texas https://www.womenscentre.net/ Resources below - Clickable links at insixteenyears.com/episode113 --Information on HRT –Marquardt RM, Kim TH, Shin JH, Jeong JW. Progesterone and Estrogen Signaling in the Endometrium: What Goes Wrong in Endometriosis? Int J Mol Sci. 2019;20(15):3822. Published 2019 Aug 5. doi:10.3390/ijms20153822 – There is also a chart of differences of endo and the endometrium here. –Bulun SE, Monsavais D, Pavone ME, et al. Role of estrogen receptor-β in endometriosis. Semin Reprod Med. 2012;30(1):39-45. doi:10.1055/s-0031-1299596 —Progesterone Resistance in Endometriosis – Article on Nancy’s Nook. –-Bulun SE, Cheng YH, Pavone ME, et al. 17Beta-hydroxysteroid dehydrogenase-2 deficiency and progesterone resistance in endometriosis. Semin Reprod Med. 2010;28(1):44-50. doi:10.1055/s-0029-1242992

112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

Today we are so excited to speak with Julia Mandeville. Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population. In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema. Julia speaks to us today about her research, how a lack of representation affects Black endometriosis patients, and her hopes for the future of endometriosis care in the Caribbean. CONNECT WITH JULIA INSTAGRAM @endoandpcosbb

111: The Grief of Chronic Illness

111: The Grief of Chronic Illness

We talk about the grief that can accompany having a chronic illness. When endometriosis causes us ongoing losses in multiple aspects of our life, over and over again, it’s absolutely heartbreaking. We talk about some reasons why we might grieve due to chronic illness, what we personally grieve, and how our grief has impacted our lives. Clickable links at insixteenyears.com/episode111 --Grieving Chronic Illness and Injury — Infinite Losses CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

110: Endo Standard of Care with Arti Shah of Kenya

110: Endo Standard of Care with Arti Shah of Kenya

We speak with Arti Shah (she/her), a content creator and a dedicated endometriosis advocate actively engaged in the endometriosis space in Kenya and beyond. Her conviction and commitment is to positively impact the narrative of living with endometriosis through self-advocacy, play therapy and personal engagement. Arti advocates so that the next generation doesn’t have to battle this debilitating condition as we have and can have a better quality of life from an early age. Arti is the host of A Ray of Sunshine, a podcast that has insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis. In this episode, Arti shares about her personal experiences with cultural and social barriers to care, as well as exciting initiatives that are improving body literacy and access to excision. Clickable links at insixteenyears.com/episode110 --A Ray of Sunshine - Arti’s podcast "involves insights from endometriosis medical experts and advocates from all over the world, and debunks misinformation about endometriosis.” --The Palgrave Handbook of Critical Menstruation Studies --Connect with Arti on Instagram @artiphotography

109: Adhesions with Excision Surgeon Dr. John Dulemba

109: Adhesions with Excision Surgeon Dr. John Dulemba

We interview Dr Dulemba, an excision surgeon who has been in private practice in Denton, Texas, since 1986. He’s performed over 7300 endometriosis surgeries, so he has a lot of insight on endometriosis. Dr. Delumba offers a second look surgery for adhesions just a few days after his original excision surgery. He brings his knowledge to this episode to answer various questions related to adhesions! Dr. Dulemba also joined us in episode 106 to speak about robotic excision surgery, so if you missed that, please check it out! Clickable links at insixteenyears.com/episode109 CONNECT WITH DR. DULEMBA: Dr Delumba works at the Women’s Centre in Denton, Texashttps://www.womenscentre.net/ --Adhesions - article by Dr. Ken Sinervo, CEC

Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy

Ep108: Advocacy Mistakes We’ve Made and Tips for Endo Advocacy

We’ve had this podcast for over 4 years! Recently, I listened to our episodes 1-50 to update them where necessary, and I saw how much our advocacy has changed and how much we’ve grown over these years. Today we talk about some of our mistakes and what we wish we’d known when we began advocating. Clickable links at insixteenyears.com/episode108 --Ellis K, Munro D, Clarke J. Endometriosis Is Undervalued: A Call to Action. Front Glob Womens Health. 2022 May 10;3:902371. doi: 10.3389/fgwh.2022.902371. PMID: 35620300; PMCID: PMC9127440. CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears

107: How to Find an Excision Surgeon with Kate Boyce, BCPA

107: How to Find an Excision Surgeon with Kate Boyce, BCPA

We speak with Kate Boyce (she/her), who is the co-founder of the Instagram and webpage EndoGirlsBlog, which provides accurate information to people with endometriosis. Kate is a board certified patient advocate and endometriosis patient herself. Excision surgery is operator dependent, meaning that it depends on the surgeon’s skills. There are very few excision surgeons in the world with the top level skill, and many regular OBGYNs with no extra surgical training, and then surgeons at different skill levels in between those. Kate breaks down for us what to look for in a surgeon, so that we can know what questions to ask and how to determine if our surgeon has the necessary skills to excise our endo. Note: There’s actually 2 types of endometriosis surgery: excision and ablation. Excision is the gold standard treatment for endo and our discussion is about finding an excision surgeon. SOURCES: Clickable links at insixteenyears.com/episode107 How to Find a Specialist - full outline and resources of what we spoke about today Analogy for the Hierarchy of Endometriosis Surgeons – IG post from EndoGirlsBlog to help understand the range of skills and experience different surgeons can have for endometriosis Treatment - learn about the differences between ablation and excision here CONNECT WITH KATE: INSTAGRAM: @endogirlsblog WEBSITE: https://endogirlblog.com/ CONNECT WITH US! INSTAGRAM: @in16yearsofendo WEBSITE AND RESOURCES: insixteenyears.com LIKE OUR SHOW? Please rate it or leave a review! SUPPORT US by buying us a coffee: https://ko-fi.com/insixteenyears